Contando uma história…

Era uma vez, uma família que ao receber a notícia aos 4 meses de gestação, que o seu bebê era portador de mielomeningocele, buscou por todos os meios as informações necessárias de como conduzir, administrar aquela “notícia” que soou como uma bomba.

Uma das formas  mais imediatas, lá no ano de 2001, foi correr para internet em busca do ainda tão pouco divulgado assunto. Lá, encontramos um site  (…) que devoramos em rápidas lidas mas, para o nosso desespero e dúvida, já não desenvolviam nem postavam nenhuma notícia por mais de 5 anos. Até hoje, uma dúvida: Aquela criança teria resistido às dificuldades…? Ou com o  corre-corre do dia-a-dia, os administradores não conseguiram manter o site ativo…? Ficou a dúvida que se mantém até hoje!!!

Daí, tão logo eu nasci, o Tio Belote cuidou de logo criar esse vivacamla com a função de informar sobre a vida, as dificuldades e alegrias de um portador de spinha bífida, e o sucesso foi absoluto. O nosso vivacamila durante estes anos tem servido, acalentado, instruido e amenizado diversas e diversas famílias que buscam esclarecimentos.

Hoje, embora sem postagens tão regulares, buscamos trazer sempre informativos de como a nossa Camila se encontra,levando ao nosso público a mensagem de o quanto somos felizes por termos esse sorriso em nossas vidas.

Levar informação de forma a amenizar sofrimentos e trazer esperança, é o nosso dever.

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9 Responses to Contando uma história…

  1. Dilza says:

    Precisamos de novidades. Como está a nossa CAMILA hoje?

  2. Glad you ladies all enojeyd my dirty little secrets. It was fun to put the list together. Danielle, I can’t believe you’re on number 3. I’ve heard that once you get it done you may have to go in again, but so far so good. It’s still stuck on!

  3. Now I’m like, well duh! Truly thankful for your help.

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